Myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS) is a debilitating illness that affects most body systems including the nervous, immune, cardiac, gastrointestinal and endocrine systems.
It is conservatively thought that it affects between 0.4 and 1% of the Australian population – or between 10,000 and 26,000 Western Australians.
Some sufferers have attributed their symptoms to tick-borne illnesses, including Lyme Disease, which is not recognised by the Australian medical community.
ME/CFS is a debilitating condition is made even harder for sufferers because they face challenges in securing a diagnosis or, worse, being believed in the first place. In some instances, sufferers have died by suicide.
The WA Government must prioritise investment in research to better understand what is causing MED/CFS and on improving treatment options for people who are already affected.